BOOK EXCERPT: Every Least Sparrow – Chapter One – “I Bring Forth A Rarity”
Every Least Sparrow is available in hardcover, paperback and as an ebook. Books available on Amazon, Barnes & Noble, IndieBound (local bookstore), Books-A-Million, Indigo Books, more. Ebook available on Amazon.
Author: Carolyn Walker
Book: Every Least Sparrow
Garn Press (226 pp.)
$27.95 hardcover, $14.35 paperback, $9.99 e-book. Ebook $2.99 through Kindle Matchbook Program
Buy: Amazon | Barnes & Noble | IndieBound | Waterstones | Books-A-Million | Indigo Books
Preface by Raoul Hennekam, Professor of Pediatrics and Translational Genetics
There you are. A doctor has just told you your child has a syndrome. A syndrome: even just that word, it sounds already ominous. In fact you know only of Down syndrome. But Rubinstein-Taybi syndrome? Never heard of it. You have all kinds of questions, but then it becomes clear your GP and your pediatrician have never seen a child with this syndrome either, so they can hardly help.
What to expect? Are there medical problems? Should a child with this syndrome be under control for these, and can you prevent anything? How about medications? Can your child go to school later on, or marry, or have children? How is it to have a child with this syndrome? Will you be able to cope with it? Can you go on having a job? Will it influence your relationship with your partner or your other children?
As always the best information can be obtained from those who are dealing with children with the syndrome most: the children themselves and their parents! The present book is written by such a parent, and offers a wealth of information. Surely about the syndrome itself. But, more importantly, how the life is of a family in which a child with Rubinstein-Taybi syndrome is born. The shock, the disbelief, the uncertainties, the anxieties. But also the unexpected joys, the warmth and care of people of whom you hadn’t expected it, the laughter, the love. The book is written in a marvelous style, and is open, in every sense of the word. The book teaches you also how to look into the world through the eyes of someone with the syndrome, and you will read it is usually a beautiful world.
The word syndrome? Please just forget it. Read this marvelous book, cry and laugh, and enjoy. – Raoul Hennekam MD PhD, Professor of Pediatrics and Translational Genetics, University of Amsterdam, Medical Advisor of Rubinstein-Taybi support groups (several countries), Amsterdam, June 2016
BOOK EXCERPT: Chapter One – “I Bring Forth A Rarity”
Five Star Amazon Book Reviews
“Every Least Sparrow” is one of those rare books that combines honesty, depth, tears and laughter. Carolyn Walker unflinchingly tackles the subject of raising a challenged child. There are intimate scenes of every aspect of family life centering on the raising of Jennifer, who brings her own bright spirit into all that she touches. It’s such lyrical writing about such a difficult subject, that I couldn’t put it down.” – Amazon Customer, AMAZON
“Every Least Sparrow has, among moments of trepidation and sorrow, incredible moments of joy and brilliance. It’s an account of love and amazement. It reminds me that, as parents, we we wish the best for the children, and hope that they will grow to be wise, but their existence and purpose in life is their own, and the way they view the world is independent from us. The best we can do is nurture and love them and then let them fly.” – Amazon Customer, AMAZON
“A wonderful story that chronicles the joys and sorrows of parenting a disabled child. You realize Jennifer is a child filled with love for others and enjoys life to its fullest. The story will leave you feeling hopeful! I highly recommend it!” – Amazon Customer, AMAZON
“This is a very touching and heart-felt story that reveals both the anguish and the deep love and joy of caring for a sweet disabled child. It is surprisingly uplifting and is amazingly honest and very readable. I highly recommend this great book.” – Amazon Customer, AMAZON
“This book will be mandatory reading and discussion for resident dentists in my training program, and I will recommend it nationally through our professional groups. Nurses, special education teachers, physicians-especially pediatricians, counselors, social workers, and clergy will all learn from the experiences of this family. I have given copies to hospital administrators and health care decision makers to help them better understand the needs of those people with special needs. Finally, this book chronicles an important time in how we treat people with special needs. In the years before Jennifer’s birth, parents would have been advised to give her to the state, and institutionalize her. Yet Don and Carolyn followed the words of Dr. O’Neill to “love her with all your heart.” This is the story of how two resilient parents did not give up. They helped all of us find Jennifer’s joy, and allowed it become part of our lives also. You too will find Jennifer’s joy in this book.” – Amazon Customer, AMAZON
“Great read you will find yourself inspired by Jennifer and her family. This book would make a wonderful addition to any medical or nursing school experience.” – Amazon Customer, AMAZON
“What a wonderful book! I could feel all the ups and downs of raising a child with special needs and my heart just exploded with joy as Jennifer grew-up. Through it all I fell in love with Jennifer and was so engaged with her parents and their trials and tribulations. It was an engaging read and anyone who has raised a child with special needs will definitely relate to this book.” – Amazon Customer, AMAZON
“This is a wonderful and touching book that takes us into the world of disability –a world most of us know little about. The experience of actually entering this world is unforgettable. Jennifer Walker, born with RT Syndrome, teaches us all the importance of experiencing life with an attitude of “yes, I can.” Her spirit is amazing. You cannot help but admire her zest for life and fall a bit in love with this determined girl. Kudos to Carolyn Walker, Jennifer’s mother, for writing a book that is both heartwarming and heartbreaking. I was so impressed with her ability to write with such honesty and love. This is such a beautiful story of Faith, Hope, and Love — “Faith to keep believing without seeing; hope to carry on when life seems dark; and Love that hangs around though problems do abound.” What an amazing family. What an amazing book. I definitely recommend Every Least Sparrow.” – Amazon Customer, AMAZON
“Ms. Walker is a talented writer and her family story is all the better for it. A challenged child also challenges our capacity for joyousness … beautifully written . This is a must read not only for those who live with or work with special people but also those who appreciate a good book!” – Amazon Customer, AMAZON
“Every Least Sparrow is heartbreaking, funny, and uplifting. Carolyn Walker tells her story with unflinching honesty and a notable absence of self-pity or melodrama. Beginning with the unusual birth of her unusual daughter, Jennifer, this well-crafted story pulls you in and doesn’t let you go until Jennifer grows up. The entire journey, fraught with frustration, despair and determination, is also saturated with love, not a thin, saccharine love but rather a robust, hard won, fierce and eternal kind of love. Beautifully written, a compelling read.” – Amazon Customer, AMAZON
“Beautifully written, an ispiring story of a mothers search for answers. Would be a helpful guide for anyone dealing with the unexpected consequences of a disabled child.” – Amazon Customer, AMAZON
“This book is so honest and raw and beautiful. It gives you an intimate, real-life view of a family riding the waves of raising and living with a special needs child. It is both joyful and heartbreaking. Carolyn weaves such detail into her writing that you feel like you are there, in the moments she spent raising her daughter, Jennifer. This book is an inspiring read for parents and families with special needs children and, truly, a wonderfully shared journey that will capture and uplift any reader.” – Amazon Customer, AMAZON
“Grace, courage and steadfast love is what you’ll find in Carolyn Walker’s new book. Unflinchingly truthful and at times emotionally wrenching, Walker describes growing up her daughter Jennifer, with RT syndrome, to independent living. This is a beautifully written many-layered book of family survival.” – Amazon Customer, AMAZON